Tuesday, July 19, 2016

July 19

Summertime fun is in full swing!  Little Sweetie is enjoying her summer, but still is in a bit of a culture shock at having her big brother home all the time!  This sharing toys and attention is for the birds and I think she is counting down the days until school starts back!

Even with all the screams of "that's mine!" I have enjoyed the times when they actually show each other how much they love each other.  I am glad they get to have this time together (although it is wearing Momma out)!


Fun at the pool (with special thanks to Ms. A for making this day possible!  I can't safely take them both to the pool by myself, so her help is so appreciated)!



Though they don't look like it in this picture, it has been fun getting back to Boot Camp with these two cheering me on from the sidelines!




     

     


Watching them play together in our little backyard lagoon makes my heart swell.  I hope she always remembers how much her brother did try to play with her as much as he was able.




Family story time with Daddy.  




And, of course, always a willing WILLPower representative!  Here she is with Little Buddy and their babysitter, Olympic diver Ms. K!  We can't wait to cheer Ms. K on in Rio next month!



But don't worry; she's still getting into plenty of hijinks on her own!

     


Like when she's a super hero cowboy...




...or when she's helping Daddy with building projects...



     

...or when she is having her own personal dance party in a restaurant booth (I thought I was getting  video of this amazing choreography, but only got pictures instead...I was so sad)!


Height and Weight
And she's at 30.8 lbs right now, but at least staying above 30 consistently now.  And still a shorty at just 35.75 inches!

Personality
She is so inquisitive and really wants to know why and how things work or do what they do.  I love these moments because I can how much she loves learning.  I hope that I can continue to instill that quality in her. She also talks about herself so positively, about how brave and strong and fast she is.  All I want is for that self-esteem to last and last.  It's definitely a work in progress to raise girls with this mindset and help them keep it!


Developmental Milestones
Again, she is ahead in so many things in terms of her development, but the one thing I want to comment on now is her emotional maturity.  She knows Bubby is different and she knows that I take him to Minnesota for medicine.  But she also knows that Bubby needs more help and attention from me.  Although she does take advantage of me having to pay attention to Bubby in order to get away with silly antics of her own (like running around a restaurant), I also see her trying to help me.  She knows that she can walk around in a store and that Bubby needs to stay in the stroller, so she offers to look for things or hand them to me.  Around the house, she knows that Bubby often wants his water cup or his Prince Wednesday doll and will take it upon herself to go look for them.  

I hate everything that she has to go through with Sanfilippo.  I want her to have a full and rich sibling relationship and I wish she didn't realize that she needs to grow up a little quicker because of her brother's condition.  But I am very proud of the person that is emerging from these circumstances.  Very proud.  


Fun Tidbits
Remember what I said about adding bedtime rituals in order to delay her bedtime?  Well, now she has added "tell me a story" after her normal book reading portion of the evening.   This usually involves Momma making up a story about a central character that happens to share a little girl's name and her adventures in space, a castle, a forest, etc.  It's funny, but it's funnier still to watch her try to stall dreamland, especially when she needs it (naps during the summer are much shorter thanks to Big Brother being home)!

Good night all, 

LSM

Little Sweetie's Momma 

Sunday, July 17, 2016

Family Date Weekend: Jellystone Park!

As we try to make the most of our summer together, we decided to cross another family activity off of our list:  Camping!  Both kids had been asking to go camping for awhile, so we decided to do a trial run at nearby Yogi Bear's Jellystone Park!



We are here!


We got a cabin by the lake and the kids really enjoyed exploring it, especially the loft part upstairs!  We spent the first night settling in and reading stories.


Checking out the loft!





Reading stories by flashlight!



The second day was the big day for the kids.  We got to meet Yogi (although Little Sweetie thought he was better from a distance) and played all day at the water park!  We finished the day with an ice cream social, ceramics painting, and Little Sweetie trying her hand at fishing!

     

Hi there, Yogi!



Chatting with Yogi before the pool opens!



     

We didn't get a ton of pictures at the pool because we were so busy, but lots of fun had by all!




Little Buddy devouring his ice cream at the ice cream social!



     

Little Sweetie making up her own version of the Snoopy game in the cabin.




She ended up LOVING fishing!



Our last day started pretty uneventful, but finished as anything but.  We enjoyed a pancake breakfast before packing up the cabin to head home.   However, during the packing process we had a mishap.  You see, Sanfilippo has robbed Little Buddy of his attention span.  He can no longer focus on anything for any given time.  Having to pack up while a hyperactive six month old is running back and forth in an non-childproofed cabin is not an easy task.  We can't even put on a show for him and trust him to sit still and watch it, sadly.  However, the cabin did have a screened in front porch and Little Buddy loves to pretend to sweep.  The porch was empty, so we put him out there with a broom to sweep and jump around to his heart's content while I packed the cabin and Daddy loaded the car.  All was well and good until I heard the screams and saw the blood.  :(

Little Buddy had somehow pulled the cap off of the end of the handle of the metal broom, exposing a sharp circle of metal, which he then put in his mouth and tried to run with.  Of course, since it was a mouth injury, there was blood everywhere.  I steeled myself so that I could calm him.  At first I was concerned that he had knocked out a tooth, but when we leaned him back to look, I noticed that he had scrapped the roof of his mouth.  We calmed him down and cleaned him up and soon he was fine and even drinking water.  Because the bleeding seemed to stop, his tetanus was up to date, and he was driving and acting fine, we decided he was ok.  I held him while Daddy packed the car and off we went.  We event stopped to get lunch, which he ate just fine.

But that wasn't the end of it.

Later that night, I noticed Little Buddy clearing his throat oddly, so we laid him back to look in his mouth again.  Initially worried that the scab on the roof of his mouth had opened, I was horrified to find that this time I could see back further into his throat and that he had actually cut a dime-sized chunk of flesh out of his throat with the broom!  We immediately rushed him to the emergency room, thankful that our neighbor was home to watch Little Sweetie while we did so.

To make a long story short, the ER doctor said that Little Buddy was going to be OK.  He had injured himself over his hard palette and it would heal on his own.  We just had to administer an antibiotic and use a mouthwash to prevent infection.  It was scary to hear, though, how lucky we were.  If the injury had been just a few centimeters to the side, Little Buddy would have cut over his soft palate and possibly into his carotid artery.  My heart stopped as the doctor told us that.

We knew that our lives were going to be harder with Little Buddy's Sanfilippo diagnosis, but this was the first time that we came THAT close to a live-threatening situation.  We are immediately putting measures into place to help keep him safe, including looking into have a secure chair to put him in when one of us can't be with him or hold him.  We love our Little Buddy so much and we hate what this disease is doing to him.  But it is our reality; so we will adjust so that we can keep making memories together as a family.  Because our time together is what matters most.  



Starting the day with pancakes...




...but ending in the ER.  Thanking God that Little Buddy is ok!


Hoping for many more adventured-filled family dates, but maybe with less injuries!

Good night, 

Little Sweetie's Momma

LSM

Tuesday, June 21, 2016

West Coast Adventures!

And our super busy month of June continues!  Following Little Buddy's week in Minnesota and birthday shenanigans, all four of us packed up again.  This time we are headed to the West Coast!  Uncle C and Aunt A are celebrating their wedding in Oregon, so we decided to turn it into a road trip vacation by flying into California and driving up the coast!  It was quite and adventure and definitely hit pretty high on the crazy scale, but it was also a lot of fun too!


The mess...unpacking just to repack!


     

Ready to fly!  These kids know we are headed to a special first stop on our trip...Disneyland!


We decided to really go big or go home by flying into Los Angeles so that we could go to Disneyland!  (By the way, if you would have told me last year that we were going to do both Disney parks within one calendar year of each other, I would have told you that you were nuts!).  But that was the plan.  What made the plan extra grand?  We would be going to Disney with our dear friends, the D family!  The moved from Texas to California last year and we have missed them so much!  We got to meet them for dinner at Downtown Disney the night we arrived.


The kiddos did great together!  Little Buddy was so excited to see his best buddy, J!  And Little Sister made instant friends with both the girls.  



      

Seriously, the girls formed such a quick bond!  They didn't want to be apart!




We also were fortunate enough to meet another Sanfilippo family while we were out there.  C and his parents were so wonderful.  It always means so much to meet other families.



The next day was D-Day...for Disneyland!


     

Riding the shuttle to the park!



     

Safe to say that this kid is excited for what's in store!




Spreading Sanfilippo Awareness in the Happiest Place on Earth.






Here we are!  All together at Mickey's Castle (as Little Buddy would say)!


Little Buddy's favorite thing on his Make-A-Wish trip to Disney World last year was the character breakfast.  So we decided to start this trip with one as well.  Unfortunately, while Little Buddy liked it, Little Sister saw Captain Hook first and got scared!  It wasn't too fun for her until Minnie came out to say hi!

     

The boys with Captain Hook and Chip.



The Fairy Godmother trying to explain that Little Sister should just make Tick-Tock sounds like the crocodile in order to keep Captain Hook away!




She was much happier when Minnie came out, but still needed Momma to hold her.  


And then it was time for the rides.  Only Little Buddy and J were tall enough to ride the majority of the rides, so we tried to keep the girls entertained and in on the magic too!



     

Carousel time!



       

Both boys loved Splash Mountain!



     


And Big Thunder Mountain Railroad!





The brave boys walking back from Big Thunder Railroad...




     

...while the girls enjoyed cookies, silly time, and Toon Town!



When it was time for lunch, we all sat down and took a break.  Little Buddy sat next to J and, out of no where, embraced him in the biggest hug ever.  Little Buddy doesn't spontaneously hug as much anymore, so this just shows you how special his friend J is to him. 





Buddies!




Planning out the rest of our day!




Little Sister on Dumbo with Daddy!



     

The kids (and daddies) loved rolling this rock and water sculpture!


We hit many more rides and adventures that day, but I was too busy having fun to get many pictures.  It was a busy but wonderful day with our friends.  We are so glad we got the opportunity to see them and spend this time with them. 


Group shot outside the Star Wars exhibit.  Lots of WILLPower!





Goodbye Disneyland!  Thanks for so many memories!



The next leg of our journey was to drive north to San Francisco!  It was fun watching how the landscape changed from dry and brown to lush and green as we journeyed up the coast.





Heading north!



     

     

Sorcerer Little Buddy is handing the drive well, but Little Sister is OVER it already!






We were informed that the Happy Cows of California are not these southern cows, but the northern ones.  





So many windmills!







Getting our sillies out at rest stop!





Coming into the Bay area!



          


Driving into San Francisco!






Decided to take in a Giants game and cross another Stadium off of our list!




Ready for the Giants!  Unfortunately, I think he thought he was going to see REAL Giants and ended up being a little disappointed.  







Beautiful stadium!  Just got a bit cool for us Texans out on the water!



Buildings lit up in honor of the Orlando night club shooting.



     

Just hanging out in the hotel.  The love for his sorcerer Mickey hat is my favorite thing ever!



     

Fueling up with their favorites (pancakes for Little Buddy and bacon for Little Sweetie) so we can start the day's adventures!






Momma got to go see the Painted Ladies and the Full House house!



We decided to finish our San Francisco trip with some views of the Golden Gate Bridge before heading on to Muir Woods.


Coming up to the bridge!



     

On the Golden Gate Bridge!





Found a viewing point, but it was a little windy.  Someone was scared that she was going to lose her hat!






Stunning!




Daddy taking selfies.










Lots of bridge pictures!





Looking out in the bay at Alcatraz!




Then it was time to continue our journey.  We were headed to Muir Woods next so that we could see the redwood trees!  The trees were just as giant and majestic as you would imagine.



Quick picnic lunch in the rental van before our hike through the redwoods!





Heading in!




     



     

     

     

     

     


     

     


     


Just beautiful views all around!  And so serene.  Daddy thought the wood burls were really cool, while Little Buddy and Little Sweetie tried to find bears (only carved ones were located, thank goodness!).  Momma really like the "Family Circles" explanation of how the trees survive.  A very cool way to spend part of our day together!



     

This one is ready for more adventure!


WE drove out of the woods and up to an observation area to get our first real view of the coast.  We had decided to take California 1 for a good part of the route and were excited to see the Pacific.


World War II Bunker overlooking the Pacific Ocean.









Just gorgeous scenery!








     




But while the scenery was very pretty, the route was also very winding.  And it turns out winding roads and Little Buddy's tummy don't mix well!





Thankfully, he only got sick once and was in good spirits afterward.  Anytime after that, if he told us he felt "hurt" we'd pull off and take a rest.  It made a long drive longer, but worth it not to have a sick kid in the car!




Thankfully, Little Sweetie had no issues.  



     


See, we found the happy cows!  They have much greener pastures and can just walk on the road down by the ocean!






Selfies with Daddy at Bodega Bay!






A quick breather at Salt Point State Park.






We made it to see Point Arena lighthouse, but not in time to go in it.  Still just enjoying the ocean views!







Just watching the waves crashing into shore is so calming and hypnotic.




Quick view of Philo Beach before heading into the hotel for the night.



Upon waking up the next morning, we walked around Glass Beach before heading to our next kid friendly activity, a historic train ride!






Enjoying Glass Beach, but hoping to touch the Pacific later today!



Little Buddy and Little Sweetie love train rides, so we decided that our next adventure should be a ride on the Skunk Train!



All aboard!





Ready to ride!




The open air car was a nice way to enjoy the scenery!





     


     


The weather was so nice for our trip too!




Momma and Little Buddy in deep conversation...




Little Sweetie watching the world go by.



     

Daddy had a Skunk Beer on the Skunk Train!




Little Sweetie approved!





Another successful family adventure!




Daddy and Little Buddy had fun on the train!




Beautiful view from a winery.  Daddy and I will have to come back sometime without kids to really enjoy it!




Happy boy still enjoying the road trip!



We then came upon one of the really touristy parts of our trip:  a stop at the Chandelier Tree!  It was a fun stop to get out with the kids after driving through the tree.

     

     

     


Posing in a fallen sequoia trunk!



After the Chandelier Tree, we found our beach!  A lovely beach was at the entrance to Redwoods National Park.  Lots of room for Little Buddy to run!  Little Sweetie also had fun, but was unsure about the waves, so she decided to stay a bit more inshore.  




     


Freedom to run!



     

Beach baby!






Just a lovely moment.





We found elk!





Resting up in the hotel.  We'll be in Oregon tomorrow!




And here we are!





Playing "grab my foot" as we neared Portland!



After meeting up with Mimi and Pop-Pop and getting settled in, we left the next day for our first Oregon adventure, Multnomah Falls!


Beautiful drive to the falls!




     


     

     





Taking in the view from the bridge!







Little Sweetie looking at the plant life with Mimi.



All done!



And then it was time for Uncle C and Aunt A's reception!


Beautiful dinner out on the deck.



     

Little Sweetie learning about buoyancy from a cork.



Aunt P and Little Sweetie.


     



Actually, Little Sweetie tried to steal the show!







Congrats Aunt A and Uncle C!




Watching the sun set!


After the reception, Daddy and Momma made a quick getaway up to Washington to do a little star-gazing and to see the Cascades.  


Momma always wanted to go to a Dark Sky certified site!








There were no clouds in the morning, so we really got to enjoy the mountain views!



Headed back into Oregon!




When we made it back to Oregon, we met Mimi, Pop-Pop, Little Buddy, Little Sweetie, Uncle C, and Aunt A for Father's Day brunch!  Then it was off for one final adventure...the zoo!






Another train?  Not a skunk train this time.  Excited to ride the zoo train with Mimi and Pop-Pop!




Of all the things in the zoo, Little Sweetie decided the fruit bats were her favorite!  Probably because she thinks she's Batgirl!


Time to fly home...




Goodbye mountains!  We'll miss you!




And finally home.  Story time for these two tired kiddos.


June was a fun month, but it's hard to believe we haven't been home for hardly any of it!  Looking forward to settling in and resting a bit in July and August!  The summer is going to fly by!

Good night, 

LSM

Little Sweetie's Momma