Sunday, July 19, 2015

July 19

I'm not sure calling this a crazy month really encompasses all we have been through, but that's the best word I can think for it.  Thankfully, our Little Sweetie has weathered it all with her (usually) sweet and easy-going disposition.  She's been dealing with Momma and her Bubby traveling to Minnesota and changes in her routine and then went with the flow during our big 7/11 to Cure Sanfilippo events and our Ohio/Pennsylvania trip.  Even with all the big things happening, it's nice to take time and really focus on her little moments.

     

     

Look at this happy girl showing off her new dress!  So cute and grown up that I can't even stand it!



     

However, don't tell her that you think she's grown up, or else she jump right back in the bouncer and insist she's still a baby!



     


Also, she'll also try to convince you that she's not always happy, like here, when I caught her twirling around the greasy flag pole right before we were supposed to leave.  She's not mad she's dirty, she's mad I made her stop!   I guess I'm taking a coal miner with me to do errands today!





But she's also an awesome sister.  She insisted on waiting up until brother got home from his Minnesota visit and then had a peanut butter and jelly sandwich with him.  I'm so proud of her and hope that her empathetic heart continues to grow!



     

We got to have a fun Wonderwild date this month, which makes me happy.  I used to do so many activities with Big Brother when he was small and I sometimes worry that I am short-changing her, as she's just normally left to the whim of brother's needs and schedules.  Having special time that is just for her is very important to me.  




But thankfully, some of the Bubby's events benefit her too, like being recognized as an awesome sibling at the Make-A-Wish night at California Pizza kitchen.  Looking good, Chef Sweetie!



Height and Weight 
She's currently around 24 lbs. and a hair over 32 inches.  Still our little peanut!


Personality
Very happy and smiley, though definitely affirming her temper if Big Brother tries to do something that she doesn't like (such as take a toy from her)!  We've had lots of success with her colors.  She can name most of them and sort things by color.  Still not ready to sing her ABCs for us yet!   


Developmental Milestones
Still gaining words and language.  And the pajamas are working out!  I am still amazed at how easy that process went.  However, she is not going into a big bed anytime soon.  I still need her to be my baby somehow!  


Fun Tidbits
She is doing really well with Aunt J watching her.  We are so blessed by Aunt J's generosity in this.  Little Sweetie gets to keep her schedule and routine and get to develop a close bond with another adult who loves her.  We couldn't ask for anything more!

I'll hope to have more detail next month.  I feel like I am slipping a little with everything that is going on with Big Brother, but it is important for me to capture all of these memories, which are now more precious than ever.


Good night, 

LSM

Little Sweetie's Momma

Saturday, July 18, 2015

Lots of Fun in Ohio (and Pennsylvania Too!)

With everything that's so quickly happening with Little Buddy's diagnosis, we are trying our best to focus on making memories together as a family.  So, we are keeping the traveling train going!  Minnesota for inaugural clinical trial treatment last month and the Make-A-Wish trip next month means that we might as well head into Ohio (and Pennsylvania) this month!

I've already mentioned the amazing response we had for the 7/11 to Cure Sanfilippo campaign, but I wanted to touch on our other adventures as well.  We started off the visit with lots of fun at Mimi and Pop-Pop's house and in Marietta overall.  The kids got to help outside, play on the castle, take rides in the Shriner car, and even take a ride on their first sternwheeler, the Valley Gem!  


Mr. World Traveler is ready to go...again!



     


We made it!  Hanging out in Marietta, sliding down the castle slide and playing with Daisy Dog!








These two were big helpers!  They helped Mimi water the flowers...











...and then helped Pop-Pop put the new play workbench together!  Little Sister needed wear a cape to do the job correctly, of course!  ;)







Little Sister loved playing dolls with Mimi!





Definitely had some super tired kids each night, though!




We got to celebrate Little Buddy's 5th birthday again!




     

Little Sister couldn't get enough of sorting Daddy's old color bears!




Time for a sternwheeler ride!



     

Little Sister was excited for a peanut butter and jelly picnic on the boat!




Marietta College Boathouse...Momma's old stomping grounds!



     

A big treat for out little guy...he got to "drive" the boat!



I think he definitely enjoyed himself being an honorary river boat pilot!





     

And no Marietta visit is ever complete without a ride in the old car!




But we have to say that, without a doubt, the best part of this trip was receiving the news that out Little Sweetie is definitely NOT afflicted with Sanfilippo Syndrome!   WOOHOO!  She is, however, a carrier, but now she will have that knowledge and be able to make educated decisions about life when she grows up.  We could not be more thankful for this news!


The next stop on our trek was up to Canton to visit Mamaw and Papaw!  This visit was full of fun, including a nature walk at the local library with the kids' great Aunt P, playing outside, a visit from great Aunt K, and a trip to Cedar Point!


Loved the beanstalk Aunt P had decorated in the library!




Nature walk around Sippo Lake!



     

     

Thank you to my parents' neighbors, Mr. & Mrs. F, for letting the kids use your playhouse!




Little Buddy enjoying a story from Aunt K!







The many faces of Little Sister as she plays with her new favorite toy...a suitcase!




Daddy and I were so excited to share one of our favorites places with the kiddos...Cedar Point, America's roller coast!


Ready for adventure!






The kids did great with the rides!





Little Buddy was so excited to meet Charlie Brown and Snoopy!






The Peanuts gang show was a big hit with Little Sister as well!


The third leg of our trip was to Pennsylvania to see our friends, the M family!  We were so excited to play and swim, check out the zoo, and meet DANIEL TIGER!!!

     

Little Sweetie is so excited to drive to Ms. L and Mr. B's house!




     





Lots of fun swimming and playing with R and C!



     


Our best attempts at a group picture with 4 wiggle worms!



We continued the fun at Idlewild Park!  Mimi and Pop-Pop came to join us.  While all of Idlewild was fun, the best part by far was the Daniel Tiger section!

     

     

Loved watching the Daniel Tiger show and then meeting Daniel and Katerina!




Ready to ride the trolley into...




...The Land of Make Believe!!!






     

They loved seeing all of their favorite characters!


And then off to the rides!


Brother and Sister pilots!





Mr. B was very brave and did the teacups with R and Little Buddy!




     

The big kids had a great time on the Ferris Wheel with the Daddies!




Big slide time!



     


Momma realized she wasn't as young as she used to be on the Black Widow with Little Buddy!



     

     

After the park, Little Sister once again showed all her faces during a delicious dinner!




The kids had a great day and slept well, but sleeping in a hotel that means that Momma and Daddy are regulated to the bathroom to do work!


We finished our last day with a very hot, but also very fun, day at the Pittsburgh Zoo! 

     

We're going to the zoo, zoo, zoo...



     

"It looks like Chesney-dog!"




Little Sister really liked the giraffes...






...but I'd have to say that the polar bear was the highlight of the trip!






And the aquarium was a huge hit too!





Thanks to the M family and Mimi and Pop-Pop for such a fun day!


Until next time, 

LSM

Little Sweetie's Momma